Weathering the Storm
Coproducing good support for life for children, young people and adults with learning disabilities whose behaviours challenge, against a backdrop of change and adversity
Watch the presentations from the CB-NSG meeting below:
Individual Presentation Timestamps
00:00 Welcome, Background, and Agenda (Jacqui Shurlock, CEO, CBF)
09:24 ‘Groundhog Day’: A Family Carer’s Perspective (Cristina Di Santo, Family Carer)
25:19 Mental Health Bill Update (Megan McIvor, DHSC)
38:31 Adult Social Care Resource (Gemma Harpum, Family Support Lead, CBF)
52:08 ‘Unsung heroes, war-weary veterans – or equal partners co-producing a better future?’ (Dame Philippa Russell DBE, Vice-Chair, Carers UK)
1:15:36 ‘Nothing About Us Without Us’: the importance of self-advocacy (Campaign 4 Change and SeeAbility)
1:34:35 Ensuring everyone has a voice: what can be done to involve people with severe or profound and multiple learning disabilities’ (Taylor Anderson, Project Manager, CBF; Oli Smithson, Senior Strategic Improvement Coach, IMPACT)
1:45:22 Workshop Feedback – key points and reflection
2:00:17 Reflections on the past and looking to the future: putting our action into learning that improves lives (Viv Cooper OBE, Founder, CBF)
Discussion Groups
Discussions focused on 5 key areas where a real difference could be made to the lives of children, young people and adults with learning disabilities whose behaviour challenges.
Upholding rights: how can reforms to social care improve the lives of children and young people with learning disabilities whose behaviour challenges and their families?
Connor Johnston (Senior Lawyer, Law Commission Review of Disabled Children’s Social Care) and Elly Chapple (Family Carer) facilitated a discussion on the Law Commission’s recommendations and what needs to be done to ensure that social care works for children and young people with learning disabilities whose behaviour challenges and their families.
View the slides from this discussion group
Read the write-up of this discussion group
Getting the transition to adulthood right
Heather Harper (Young Person Participation Coordinator, Kids), Charles Mollet (Engagement and Inclusion Lead, Kids) and Gemma Harpum (CBF Family Support Lead) facilitated a discussion about the issues that young people with learning disabilities whose behaviour challenges face in transition from children’s to adult services.
View the slides from this discussion group
Read the write-up of this discussion group
Making neighbourhood health work for people with learning disabilities whose behaviours challenge
Neighbourhood health is one of the key components of the new NHS 10 Year Plan. Dr Amy Dissanayake (National Specialty Advisor, NHS England), Debbie Austin (Family Carer), and Viv Cooper (CBF Founder and Family Carer) facilitated a discussion about how a neighbourhood health model could address the health inequalities faced by people with learning disabilities whose behaviours challenge.
View the slides from this discussion group
Read the write-up of this discussion group
Using public money better: what reforms are needed to realise independent living in the community for people with learning disabilities whose behaviour challenges?
Bella Travis (Policy Manager, Mencap), Emma Austin-Garrod (Families Lead, Mencap, and Family Carer) and Jacqui Shurlock (CBF CEO) facilitated a discussion on how to ensure that people with learning disabilities whose behaviours challenge are able to get the right support in the community.
View the slides from this discussion group
Read the write-up of this discussion group
Supporting adults with learning disabilities and their family carers as they grow older: what is needed and how can it be achieved?
Jenny Steeples (Family Carer) and Marie Lovell (National Practice Innovation Lead, Skills for Care) facilitated a discussion about the issues that face older people with learning disabilities and older family carers.
View the slides from this discussion group
Read the write-up of this discussion group
Papers
The CBF produces papers covering key policy developments and CB-NSG work since the last CB-NSG national meeting, which you can read below: