Information packs for families faced with their relative’s transition to adult services or moving from one type of care placement to another. The packs are available for England, Wales and Northern Ireland.
There are ways you can plan ahead to ensure a smooth transition:
(a) Person Centred Planning (PCP):
- This puts the person at the centre of the process and focuses on their strengths, abilities, likes and dislikes. It is a positive “vision” of what life should look like for the person and the support needed to achieve this.
- A number of people including family should be involved in making the plan.
(b) Circle of Support:
- It puts the person at the heart of the planning, focusing on their ambitions, wishes and dreams for the future.
- It ensures there is always someone available to speak or advocate on their behalf.
(c) Emergency Plans:
- Because unexpected emergencies happen, it is best to have a plan in place of what to do.
- An emergency plan can ensure that if anything happens to you, support is given to your relative following the plan.
- Some local authorities have emergency plan schemes operating in their area.
(d) Equal Rights:
- People with learning disabilities who display challenging behaviour have same rights to all services as everyone else.
- Ask for reasonable adjustments to ensure your relative can access services equally.
What are the options available?
People with severe learning disabilities who display challenging behaviour have the same rights as everyone else, to:
- live in their local area
- have a family life
- use community facilities e.g. leisure centres
- access learning opportunities e.g. college
However, the person will need help and support to achieve these rights. Other people may also need to adapt, which is why careful planning is important.
A good service or support package should let a person with severe learning disabilities and challenging behaviour live an ‘ordinary’ life. They should have choice and control over their life, and may need to be supported to do this. The local services that are already available may be suitable or may need to be adapted to suit the person. If the options available are not right for the person, then something new must be created especially for them.
Read the Challenging Behaviour Foundation’s information pack ‘Planning for the Future’ for more information on: Person centred planning; Safeguards; Choices; Frequent challenges; Funding; Changes to rights at adulthood; Who can help; and Questions to ask providers.