The CBF's 'Getting It Right' project helps improve both national and local support and services for children and adults with severe learning disabilities and their families.
The agreed aim of the Getting It Right project in West Sussex was that children and young people (0-25) with learning disabilities at risk of displaying behaviours that challenge will receive the right support, in the right place and at the right time, from well informed professionals and staff so they can live a happier and more inclusive life in their community.
West Sussex objectives
- To provide specialist training and share best practice with families, professionals and commissioners in West Sussex.
- Support families, professionals and commissioners to develop meaningful plans for sustainable improvements in future support in West Sussex (including a self-fulfilling network reaching out further afield).
- To improve the resilience of families of children and young people with learning disabilities whose behaviour challenges, through improving networks and connections between families.
Family carer focus groups
In February and March 2020 two focus groups were held in West Sussex to gather the views of family carers about existing support and services, and families’ vision for future support in the local area.
Survey of family carers
During summer 2020 family carers across West Sussex were invited to complete an online survey about their experience of support and services for their relative. 99 families responded to the survey. Some families also participated in more in-depth telephone interviews.
And the executive summary is available here
Online behaviour support workshops for families
Due to Covid-19, planned Positive Behaviour Support workshops for family carers were moved online and run jointly by West Sussex professionals and CBF family carer trainers. Three sessions were run between October and November 2020 and were attended by family carers of children and young people with learning disabilities living in West Sussex.
Stakeholder engagement event
In December 2020 we held a virtual West Sussex stakeholder engagement event, bringing together family carers, learning disability professionals and third sector organisations from across West Sussex. The aim of the event was to share learning from the project so far, including initial findings from the online survey of family carers, and to work together to come up with actions.
Videos of Viv Cooper’s and Gráinne Saunders’ presentations from the stakeholder engagement event:
Workshop about engaging with families to improve local services and support in West Sussex
A workshop was held in the CB-NSG meeting in May 2021, during which the group discussed how to better engage with different groups of families and how to best cater for individuals with a variety of needs. The group also agreed several ideas to take forward to better connect families with each other.
Evaluation of the Getting It Right project in West Sussex
The Getting It Right project in West Sussex has been independently evaluated.
Thank you to all the West Sussex families who contributed their time, thoughts and suggestions over the course of this project.