16th June 2017

The theme of this Challenging Behaviour – National Strategy Group meeting was ‘Medication: Getting it right, whose responsibility?’ and focussed on making sure that people with a learning disability are not prescribed too much or inappropriate medication. The day included an overview of the Stopping Over Medication of People with a Learning Disability (STOMP) programme, a presentation of lived experience, workshops on a variety of topics delivered by family carers and professionals, a presentation on the recommendations from the March 2017 National Audit Office (NAO) report and sessions to pull together actions to take forward from the meeting.

 The day began with a presentation from Jill and David Jack, who have lived experience of these issues with their son. Their powerful presentation demonstrated the issues in prescribing and highlighted the need to make improvements.

This presentation was followed by Peter Pratt, the Head of Mental Health & Learning Disability Medicines strategy at NHS England. Peter gave an informative presentation about the STOMP programme and how progress must be made in this area.


Following the morning session, attendees took part in one of four workshops:

Understanding the use of psychotropic medication in primary care: Sharing outcomes from a six practice review. Clare Scarlett (Newcastle Gateshead CCG and North Tyneside CCG) presented a study on GP data of people with a learning disability taking psychotropic medication. The group discussed many issues including how the specialist learning disability sector can support primary care. Click here to view the outcomes of the workshop.

Reducing over prescribing of psychotropic medicine in people with learning disabilities. This workshop was presented by Danielle Adams (Hertfordshire Partnership University NHS Foundation Trust - via video) and Lorna Walker Bryan (Family Carer). They presented on the issues surrounding the reduction of medication and the group discussed topics such as how to support the reduction of over-prescribing and how to ensure that family members are more involved in the process. Click here to view the outcomes of the workshop.

Getting medication use right. Rory Sheehan (UCL) introduced this workshop by identifying key points where overprescribing could be avoided or addressed. The following discussion considered strengthening the use of the Mental Capacity Act, the decision making process used by GP’s and social care providers and the role of pharmacists in this process. Click here to view the outcomes of the workshop.

Empowering Families. This workshop was co-presented by Jackie Edwards (Family Carer) and Coral Gassama (CBF). The group identified barriers to empowering families to be involved in decisions about medication and how these barriers could be overcome, including the need for more information for families and training professionals in how to effectively empower family carers. Click here to view the outcomes of the workshop.




Immediately following the workshops, Cally Ward (Family Carer) led the What next: Action Planning session. In this session, 2 – 3 priority actions formulated during each workshop were suggested to the group as a whole. This was an opportunity for members to decide on the best way to move forward and commit to actions to take away from the meeting. Click here to view a write up of the action planning sessions.

After lunch, Ashley McDougall (NAO) gave a very interesting presentation on the findings and recommendations from the NAO report published in March 2017. This was followed by a brief question and answer session.


In the afternoon, attendees again entered one of four workshops:

STOMP and your part in it. Dave Branford (Royal Pharmaceutical Society) gave an overview of the activity of the STOMP programme to date. The following discussion included topics such as the lack of understanding of STOMP among professionals, how the culture in some healthcare environments can be unhelpful to those raising concerns and the role of commissioners. Click here to view the outcomes of the workshop.

A holistic approach to achieving positive outcomes with children. This workshop was facilitated by Jenna Bartley (Hertfordshire Community NHS Trust) who presented the Positive behaviour, Autism, Learning disability and Mental health Service (PLAMS) model used in Hertfordshire to support children and young people with a learning disability. During the workshop, the group considered how to support the ability to work holistically and the potential benefit of sharing the PALMS model with other areas and services. Click here to view the outcomes of the workshop.

Responsibilities of different professions within the STOMP programme. Ashok Roy (Royal College of Psychiatry) and Jen Fookes (Family Carer) co-facilitated this workshop to present both lived experience of overmedication and the Learning Disability Professional Senate pledge about medication. The contributions of different professions and how to overcome barriers in their roles were then considered.Click here to view the outcomes of the workshop.

Use of medication within a positive behaviour support framework. This workshop was co-facilitated by Samantha-Louise Stallard (Dimensions) and Dave Robinson (Dimensions). Their presentation focused on how positive behaviour support relates to medication and group discussion included the potential to provide GP’s with prompts around medication and that Dimensions could share the results of their recent survey. Click here to view the outcomes of the workshop.

After the afternoon workshops, Cally Ward (Family Carer) led a second What Next: Action Planning session for actions to be shared with the group. This was a busy session and led to commitments to some very concrete and useful actions. Click here to view a write up of the action planning sessions.


Written updates were provided by the steering group on the progress made since the last CB-NSG National Meeting. Click here to view the update.



Your Stories

Follow us

See us on Facebook Follow us on Twitter Watch us on YouTube

Sitemap | Accessibility | Contact Us | Shopping Cart

Make a donation

Registered charity no. 1060714