Frequently Asked Questions
There are some questions which are frequently asked and here we have provided answers to these with links to further information. If you have unanswered questions after reading this information please contact us for individual support.
Questions about Safeguarding
This information answers 3 important questions about what to do if you have concerns about the welfare of a person with learning disabilities. It also includes information about the safeguarding referral process and what to expect for both adults and children.
Questions about Raising Concerns and Legal Support
- "I am unhappy about my daughter’s care. What can I do?" - this provides useful information to family carers seeking for advice on how to raise concerns about their relative's care with professionals or care providers.
- "I think I need legal advice on behalf of my family member who has a learning disability. How do I go about this?" - this provides helpful pointers to finding accurate information about the law, instructing a solicitor on your family member’s behalf, finding and choosing a solicitor and information on funding legal representation.
Question about Trauma Support
- ideas about support for people with learning disabilities who have experienced trauma such as inappropriate restraint, seclusion or medication, or who have been abused.
Questions about Behaviour Support
"My son/daughter is displaying challenging behaviour. Who can help us with this?" - this provides some answers about what local and national behaviour support is available for families.
"I've been told that no-one can help me with my daughter's behaviour, what can I do?" - what you can do if there is no appropriate support available. This includes a template letter you can use to write to your local Clinical Commissioning Group.
Questions about Short Breaks
"I'm reaching crisis point and need a break - what can I do?" - this FAQ provides information about what rights family carers have to short breaks and what types of short breaks are available. Also includes information about what you can do if your family member is excluded from their short break service.
"My relative has been excluded from local short breaks services because of his/her challenging behaviour - what else can I do?" - sometimes a person with challenging behaviour can be excluded from their short breaks service. This FAQ includes information about what you can do if your family member is excluded from their short break service.
Questions about Specific Challenging Behaviours
Destructive behaviours (coming soon)
Stripping (coming soon)
"The doctor said he couldn’t do any tests because my son wouldn’t cooperate and now he is an adult “it is his choice”. What can I do?" - here are our answers about consenting to treatment, including information about mental capacity
"We find it difficult to go to health appointments – what should health professionals do to make it easier?"; - services must make reasonable adjustments by law so that your relative can access healthcare. This FAQ provides further details about this
"We find it really hard to go to the dentist, is there anything we can do to make it easier?" - here is our answer to a question about going to the dentist when your relative can display behaviour described as challenging
Questions about Being A Family Carer
Making decisions - this aims to support families who are worried that they won't be consulted by professionals who are making important decisions about their relative's life. It also provides advice about what to do if you are not being properly involved in decisions about your relative's welfare, including a template letter family carers are welcome to use.
"Do I have to do this alone?" - family carers can often feel isolated and worried about who will fight their relative’s corner if they are unable to do so. One solution to this is to set up a circle of support around your relative. This FAQ explains more.
One of the 'Meeting the Challenge' guides produced by the Challenging Behaviour Foundation, alongside Mencap and Respond.
This factsheet will provide you with information about your family member's legal rights in relation to social care and health provision and how to exercise these rights.