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All Our Resources

Information Sheets

All our information sheets are available to download free of charge on this website. All our resources are available free to family/ unpaid carers in the UKIf you are a family carer and wish to order an information sheet, pack or DVD to arrive by post please contact us directly or see our resource order form. For professionals and registered charities, please order online or see our resource order form.

Understanding Challenging Behaviour: Part 1

An information sheet with basic information about why challenging behaviour happens and what can be done.

Finding the Causes of Challenging Behaviour: Part 2

This information sheets helps you to understand more about what causes challenging behaviour and what help you can get. 

Positive Behaviour Support Planning: Part 3

Are you looking for information on managing challenging behaviour? If so this is the information sheet for you. It explains what a positive behaviour support plan is, who needs one and why.

Communication and Challenging Behaviour

This information sheet explains the link between communication and challenging behaviour.

At-a-Glance Guides for Family Carers

Produced in partnership with the Social Care Institute for Excellence these guides set out how to get the right support for your relative. There are separate guides for children, teenagers and adults. 

Self Injurious Behaviour

This information sheet explains how to get help for self-injurious behaviours such as eye-poking, head banging, self-biting and skin picking. 

Pica (Eating inedible objects) and Polydipsia (Drinking Excessively)

This information sheet helps you to understand how to help a child or adult who is eating inedible objects (e.g. stones, faeces or clothing) or drinking excessively.

Difficult Sexual Behaviour amongst men and boys with Severe Learning Disabilities

Understand more about difficult sexual behaviour and how to respond by reading this information sheet. 

Health and Challenging Behaviour

Understand more about the link between health and challenging behaviour by reading this information sheet. 

Mental Health Problems in people with a Learning disability

An information sheet about different mental health problems and appropriate treatments.

Physical Intervention

This information sheet is useful for anyone who is using or considering the use of physical interventions such as restraint. 

The Use of Medication in the Treatment of Challenging Behaviour 

Read this information sheet to understand more about the use of medication and when it is and is not appropriate.

The Impact of Caring on Families

This information sheet looks at the impact caring can have on families and ways to help you cope.

For Families: Getting an Education, Health and Care Plan

This summary sheet contains guidance for parents and carers on how to request an EHC plan, the processes involved in getting one, and what the new EHC plans should include.

For Professionals: Developing an Education, Health and Care Plan

This information sheet contains guidelines for professionals on developing EHC plans for young people with severe learning disabilities and behaviour described as challenging, following their introduction in September 2014.

Getting A Statement

Read this information sheet to find out what a SEN statement is and what to include to help your child at school.

Planning for the Future

An information sheet to help when considering what your relative’s future should look like.

Getting legal Deputyship for property or welfare decisions

An information sheet which sets out how to get legal authority if your family member is over 16 and unable to make decisions about their money, housing or health themself. 

Getting the best support package: Ten Top Tips

An information sheet which provides ten top tips to help you get the right support for your family member aged over 18.

Specialist Equipment

An information sheet which gives details of specialist equipment and safety adaptations to improve safety and protect your home.

Teaching New Skills

An information sheet which explains ways of supporting people with severe learning disabilities to learn new activities, communication skills, and coping skills.

Family Carer's Information Directory

Details of organisations, books, blogs and information that family carers may find useful.

Book list For Professionals

Details of some of the key books and articles relating to challenging behaviour.

52 Week Schools and Colleges

A list of residential schools and colleges in the UK for people with severe learning disabilities and behaviour described as challenging. 

 

Information Packs

Challenging Behaviour Information Pack

This information pack contains 6 of our information sheets about severe learning disability and behaviour that challenges.  (Includes a summary version of each sheet along with a full version) Click here to find out which information sheets are in this pack.

 

Planning for the Future Information Pack

England/N Ireland/Wales

An information pack written for people planning for the future of children aged 14 and upwards (transition), and those concerned about the support needs of adult sons and daughters. Contains detailed and practical information on person centred planning, rights of adults, choices, funding, safeguarding and ideas to overcome challenges. Includes case studies about different support options and a list of questions to ask potential care providers. To read more click here.

 

8 Ways to get a House

 This guide is to help you and your relative think about the different types of accommodation and how they are funded.

We explain what your options are in 8 ways to get a house.  To read more click here.

 

 

 

A guide for Advocates (England & Wales)


If you are a professional advocate, or a family carer advocating on behalf of your family member, this comprehensive and practical   guide to advocacy is for you. 

Understand more about challenging behaviour, advocacy and the key issues which are likely to arise.  To read more click here.

 

 

 

 

 

Positive Behaviour Support Study Pack

positive-behaviour-support.jpgBased on our successful Positive Behaviour Support workshops and Supporting Behaviour Change DVD, our Positive Behaviour Support Study Pack gives staff the skills to understand and reduce challenging behaviour in young people with severe learning disabilities. 

Read more here.

Note: This resource was developed for schools and colleges but can be used in other settings. 

 

'Meeting the Challenge' Guides

'Meeting the Challenge' Guide 1: Understanding challenging behaviour and getting advice and support

One of the 'Meeting the Challenge' guides produced by the Challenging Behaviour Foundation, alongside Mencap and Respond. This factsheet provides information and signposting to help you understand challenging behaviour and how to go about getting support for your family member.

'Meeting the Challenge' Guide 2: What does good support look like for adults with learning disabilities who display challenging behaviour?

One of the 'Meeting the Challenge' guides produced by the Challenging Behaviour Foundation, alongside Mencap and Respond. This factsheet describes what ‘good support’ should include for people with learning disabilities whose behaviour is described as challenging. Good support will help the person lead a full, active life and help avoid challenging behaviour escalating into a crisis.

'Meeting the Challenge' Guide 3: What if it is getting difficult to support my family member at home or in their current service?

One of the 'Meeting the Challenge' guides produced by the Challenging Behaviour Foundation, alongside Mencap and Respond. This factsheet will provide you with information about what can happen when it becomes difficult to support a family member at home, or in their current service and they require more specialist assessment and support.

'Meeting the Challenge' Guide 4: My family member has been sent to an inpatient unit - what do I need to know?

One of the 'Meeting the Challenge' guides produced by the Challenging Behaviour Foundation, alongside Mencap and Respond. This factsheet will provide you with information that you need to know if your family member is admitted to an inpatient unit for assessment or treatment.

'Meeting the Challenge' Guide 5: Poor care and abuse

One of the 'Meeting the Challenge' guides produced by the Challenging Behaviour Foundation, alongside Mencap and Respond. This factsheet provides information to help you understand what is meant by abuse and poor care and support. It also provides information about who to talk to if you suspect that your family member is experiencing either or both of these things and needs safeguarding.

'Meeting the Challenge' Guide 6: How do we plan for a successful discharge for my family member?

One of the 'Meeting the Challenge' guides produced by the Challenging Behaviour Foundation, alongside Mencap and Respond. This factsheet will provide you with information about planning for a family members discharge from an inpatient unit.

'Meeting the Challenge' Guide 7: How do my family member's rights change as they become an adult?

One of the 'Meeting the Challenge' guides produced by the Challenging Behaviour Foundation, alongside Mencap and Respond. This factsheet will provide you with information about some of the main changes that will occur when your son/daughter moves from childhood to adulthood.

'Meeting the Challenge' Legal FAQ: Frequently asked questions about the law

One of the 'Meeting the Challenge' guides produced by the Challenging Behaviour Foundation, alongside Mencap and Respond. This factsheet will provide you with information about your family member's legal rights in relation to social care and health provision and how to exercise these rights.

 

Positive Behavioural Support - A Guide for Family Carers (PBS Academy)

This pack of resources aims to provide information about Positive Behavioural Support (PBS). It explains what it is; what it looks like in practice; provides questions to ask to check that PBS is being delivered well in the setting you are looking at and guidance on how family carers can find out more including advice on training.

Click here to read more.

 

 

 

Introduction to PBS Academy Family Carer Resources

What is Positive Behavioural Support?

What should Positive Behavioural Support look like?

Questions to ask to check that Positive Behavioural Support is being used well

Family Carers using Positive Behavioural Support

Practical tools to help you

 

Positive Behaviour Support Key Messages

The key messages about Positive Behaviour Support 

PBS provides the right support for a person, their family and friends to help people lead a meaningful life and learn new skills without unnecessary restrictions. This resource introduces the key messages of the approach: what is it, how does it work, and how can it be delivered?

 

DVDs

The following DVDs are available from the CBF. For a short preview, synopsis and to order, please click on the links below:

An Introduction to Challenging Behaviour DVDAn Introduction to Challenging Behaviour

A Consultant Clinical Psychologist, along with family carers present a basic introduction to challenging behaviour associated with severe learning disabilities.

To read more and view a short clip click here

 

Self-Injurious Behaviour DVDSelf-Injurious Behaviour

The UK's leading authorities on self-injurious behaviour, join forces with two families to offer clear and practical information and advice to families caring for individuals with severe learning disabilities.

To read more and view a short clip click here.

 

 

Communication and Challenging BehaviourCommunication

In this 45 minute DVD we meet Rhys, Laura, Sean and Isobel to examine the link between communication and challenging behaviour.

To read more and view a short clip click here.

 

Challenging Behaviour - Supporting Change

Challenging Behaviour - Supporting Change DVD

In this 2-disc DVD set find out how a functional assessment can help you to understand challenging behaviour and identify ways of supporting behaviour change

To read more and view a short clip click here

 

 

Everybody Matters

Getting the right person centred support for adults

Everybody Matters is a short film starring Colleen and Shaun, both of whom have learning disabilities and have been described as displaying challenging behaviour. This has meant that in the past both Shaun and Colleen have experienced poor support and had restricted, unhappy and sometimes unsafe lives. Their stories show that everyone can be supported to live a full and active life in their community. Click here to find out more and watch the trailer.

 

Best Practice Resources 

Working in Partnership with Families

Barriers to Partnership Working

Successful Partnership Working

 

Resources from the Challenging Behaviour National Strategy Group

Well Matched and Skilled StaffWell-Matched-Skilled-Staff.jpg

We have two pamphlets aimed at commissioners - Services for Adults with Learning Disabilities who display challenging behaviour and Services for Children and Young People who display challenging behaviour.

 

Time for ActionTime-for-Action-.jpg

Time for Action: Stopping the Abuse of People with Learning Disabilities calls for a number of specific actions to be taken in response to the Panorama Investigation.

 

 

 

At a Glance Guides

Produced in partnership with the Social Care Institute for Excellence these guides set out how to get the right support for your relative. There are separate guides for children, teenagers and adults. 

 

Better Commissioningbetter-commissioning.jpg

"Developing Better Commissioning for Individuals with behaviour that challenges services- A scoping Exercise" published by the Tizard Centre at the University of Kent as part of the Valuing People Now delivery plan.

 

The Challenging Behaviour Chartercharter-front-cover-.jpg

Sign up to the Challening Behaviour Charter and commit to endorsing the rights of individuals with severe learning disabilities who are perceived as challenging to services and others.

 

 

 

 

Resources from the Early Intervention Project

For all resources associated with the Early Intervention Project, please see our brand new website!

 

pavingtheway.works

 

Paving the Way: How to develop effective local services for children with learning disabilities and behaviour that challenges

A resource for commissioners and Heads of Service with case studies illustrating how to develop effective local services.

Keeping in Touch with Home

A resource providing guidance on how to help children and young people keep in touch with their families when living away from home.

Estimating the number of children in England with learning disabilities and whose behaviours challenge

The report of Professor Eric Emerson and colleagues that provides the first estimate of the size of this group.

Early intervention for children with learning disabilities whose behaviours challenge

A briefing paper pulling together data and research evidence in this area.

Children with learning disabilities whose behaviours challenge: What do we know from national data?

A data supplement, providing an overview of the statistics behind the key messages of the briefing paper (above).

The 'Resources' page in the Early Intervention Project section of our website lists all of the Project's resources, and signposts to relevant resources created by other organisations.

 

All our information sheets are available to download free of charge on this website. All our resources are available free to family/ unpaid carers in the UKIf you are a family carer and wish to order an information sheet, pack or DVD please contact us directly or see our resource order form. For professionals and registered charities, please order online or see our resource order form.

 

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