Policy and Best Practice

Information from the Challenging Behaviour Foundation

All information sheets are available to download free of charge on this website. To order any of the DVDs and Information Packs please contact us, download our resource order form or order online.

Working in Partnership with families

Why we think it's important for professionals to work closely with familes.

Barriers to partnership working

A look at what kind of barriers there can be to professionals and families working together.

Successful partnership working

Some ideas for working together successfully.

Booklist for Professionals

Details of some of the key books and articles relating to challenging behaviour.

Resources from the Challenging Behaviour National Strategy Group

Positive Behaviour Support: Key Messages

Our resource 'The Key Messages About Positive Behaviour Support' shows that PBS is more than just "getting rid of problem behaviours." It is a holistic approach that considers the quality of a person's life and those of the people around them. 

Read this information sheet for an introduction to PbS and how it should be carried out to ensure the best outcomes for people with a learning disability. What is PBS? Why is it effective? And how can it be delivered successfully?

Download a PDF copy here

 

Time for Action

 

Time for Action: Stopping the Abuse of People with Learning Disabilities calls for a number of specific actions to be taken in response to the Panorama Investigation.

• Stop sending people to live in hospitals for people with learning disabilities
• Make sure managers are trained. They should have to do Positive Behaviour Support training. This will help them 
  understand why people show challenging behaviour
• Train inspectors so that they know what to look for in learning disability services

Download a copy as a PDF here. An Easy Read Version is also available.

Well Matched & Skilled Staff

We have two pamphlets aimed at commissioners - Services for Adults with Learning Disabilities who display Challenging Behaviour and Services for Children and Young People who display challenging behaviour.

Both are available as PDF Dowloads.

Download "Services for Adults with Learning Disabilities who display Challenging Behaviour" here.

Download "Services for Children and Young People who Display Challenging Behaviour" here.

Social Care Institute for Excellence ‘At-a-Glance’ Guides

Three ‘At a glance’ guides aimed at family carers supporting people whose behaviour is described as challenging are available. The guides have been developed in collaboration with the Social Care Institute for Excellence (SCIE). There are separate guides for adults, teenagers and children.

Challenging behaviour: a guide for family carers on getting the right support for children. Social Care Institute for Excellence.  At a glance 38

Challenging behaviour: a guide for family carers on getting the right support for teenagers. Social Care Institute for Excellence.  At a glance 39

Challenging behaviour: a guide for family carers on getting the right support for adults. Social Care Institute for Excellence.  At a glance 37

Better Commissioning - Scoping Exercise

As part of the Valuing People Now delivery plan “Developing Better Commissioning for individuals with behaviour thatchallenges services – a scoping exercise” has been published by the Tizard Centre, University of Kent and The Challenging Behaviour Foundation.

Full report: Developing better commissioning for individuals with behaviour that challenges – a scoping exercise. Peter McGill, Vivien Cooper & Gemma Honeyman (2010). The research identifies key findings from interviews conducted with commissioners and family carers and makes a number of recommendations.

Summary report: Developing better commissioning for individuals with behaviour that challenges – a scoping exercise. Peter McGill, Vivien Cooper & Gemma Honeyman (2010)

Charter

 Sign up to the Challenging Behaviour Charter and commit to endorsing the rights of individuals with severe learning disabilities who are perceived as challenging to services and others.

Download the Charter

Download an Easy Read Charter

 

Key Policy Documents, Best Practice Guides and Reports

Policy

Mansell 2: Services for people with learning disability and challenging behaviour or mental health needs (2007)

Fulfilling the Promises (Wales)

Valuing people now (England): A new three-year strategy for people with learning disabilities (2009)

The keys to life (Scotland): Improving Quality of Life for People with Learning Disabilities (2013)

Equal Lives Report (Northern Ireland): Review of Policy and Services for people with a Learning Disability in Northern Ireland (2005)

Valuing People: A new strategy for learning disability for the 21st century a white paper (2001)

Raising Our Sights: Services for adults with profound intellectual and multiple disabilities.  A report by Professor 

Jim Mansell. (2010)   

Fulfilling and Rewarding Lives: The strategy for autism in England. (2010) 

Best Practice

Better health, better lives: Children and young people with intellectual disabilities and their families. World Health Organisation (2010).   

Challenging Behaviour: a unified approach. Clinical and service guidelines for supporting people with learning disabilities who are at risk of receiving abusive or restrictive practices (2007)

Putting People First: Working together for change: using person centred information for commissioning (2009)

The Association for Supported Living (ASL): There is an Alternative (2011)

RCSLT - Five good communication standards: Reasonable adjustments to communication that individuals with learning disability and/or autism should expect in specialist hospital and residential settings (2013)

Royal College of Psychiatrists’ Faculty of Psychiatry of Intellectual Disability: People with learning disability and mental health, behavioural or forensic problems: the role of in-patient services (2013)

NICE Quality Standard Learning Disability: behaviour that challenges. Covers care and support and services for children, young people and adults with a learning disability (or a learning disability and autism) and behaviour that challenges, and their families and carers. (Updated 2019)

Reports

Learning Disabilities Census Report (2013)

Department of Health Winterbourne View: Transforming Care One Year On (2013)

Local Government Association: Local area status reports (2013)

Department of Health Winterbourne View Review Concordat: Programme of Action (2012)

Department of Health Winterbourne View: Transforming Care (2012)

South Gloucestershire Safeguarding Adults Board: Winterbourne View hospital - A serious case review (2012)

Improving Health and Lives (IHaL):  Public Health Observatory - A review of the results of the 2011/2012 focused CQC inspections of services for people with learning disabilities (2012)

Care Quality Commission (CQC): Learning disability review (2012)

 

More Best Practice Resources

Click this link to see a further list of available best practice resources including a report from the Association of Supported Living, 'Supporting Me' - a guide for personal assistants and 'Good Practice in involving families in workforce development'.