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CB NSG 23rd Nov 2018

The latest Challenging Behaviour National Strategy Group meeting was held on Friday 23rd November at The Wesley Hotel and Conference Centre, London. The title of the day was ‘Making it happen and sticking with it’ and the theme was putting the principles of Building The Right Support into practice, developing effective and sustainable community support for people with learning disabilities and/ or autism.

The planned outcome of the day was to identify the actions needed to develop/ maintain/ replicate good practice across localities to enable the needs of children, young people, and adults with learning disabilities and/ or autism to be met effectively. The actions from the meeting will be included in a submission to the Prime Minister and the Secretary of State for Health and Social Care.

At the meeting there were presentations from a variety of perspectives (family carer, commissioner, service provider, community support and regulator) honestly showing the challenges and successes of delivering good community support. Viv Cooper (CEO of the Challenging Behaviour Foundation) opened the day and welcomed everyone to the event.

The first presentation was from the perspective of a family carer. Claire gave a powerful presentation demonstrating the positive difference that support in the community has had to her son’s life, and to the rest of his family. Claire’s story motivated productive discussion during the day and received very positive feedback.

The next presentation was a commissioner perspective delivered by Thomas Moore, Commissioning Manager for Surrey County Council. Trudy Neill from United Response co-presented with family carer, Jill Jack sharing a service provider perspective.

In the afternoon Dr Freddy Jackson Brown from Bristol Intensive Positive Behavioural Support- Autism presented an example of community support. The final presentation was from the regulator perspective, delivered by Dr Theresa Joyce from the CQC and Glenice Lake, family carer and Expert by Experience.

After the morning presentations attendees were divided into 4 mixed groups, each with a group facilitator, to discuss the challenges to good local support, the elements required to make it happen, and how it can be maintained and replicated across regions. The groups reformed after the afternoon presentations to continue discussions. By the end of the day each group had completed a table identifying for each theme/ aspect of successful local support the actions required to make this work.

What worked well / what didn’t work?

What made a difference/ what would make a difference?

What is needed to make it work?

How? Actions to make this happen?

Assigning actions

 

 

 

 

Individual

Local

National

 

 

 

 

 

 

 

In addition to the presentations, associate and core members were invited to apply to present posters at the meeting demonstrating examples of effective local support.  The successful posters were displayed for attendees to view during the morning coffee and the lunch break and influenced discussions during the day. One poster was also displayed summarising recent research on the impact of the Challenging Behaviour Charter.

The posters displayed can be viewed by clicking on the links below:

Challenging Behaviour Charter

Havencare

I'm Out Of Here Ltd

Mersey Care NHS Foundation Trust

My Pesp

Southwark Enhanced Intervention Service

Surrey PBS Network

The Richmond Fellowship Scotland

The day ended with a feedback session run by Dave Williams. All four discussion groups rejoined and each group fed back, choosing one action identified within their group and explaining how and why it is necessary for the provision of successful local support. The following four national actions were identified in the feedback session (this is only a small selection of the actions identified throughout the day). All the other actions were captured and will also be taken forward.

-          We need a National Champion for Learning Disability and Autism, akin to the children’s commissioner. This national champion needs to hold the government to account for strategy as well as take complaints from individual families.

-          We need ringfenced funding for local community support, for early intervention and prevention

-          We need an accountability code for commissioners- to make sure commissioners are delivering small scale services to meet individual needs and checking quality and value for money.

-          We need need to promote investment in individual service design now to break the cycle of crisis admissions and save costs (human and financial) in the future.

Thank you very much to all those who attended. It was a great day and we look forward to seeing the identified actions implemented, and more people with learning disabilities and autism being successfully supported in the community.

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