Opening my World


When my son was diagnosed we didn’t have mobile phones or computers. And because of my son’s challenging behaviour life could be very isolating. The few books in the library portrayed very negative stereotypes.

But with the birth of the internet, accessible to all, things have changed. I have a wealth of information at my fingertips. I have taken part in various consultations, joined campaigns. There are discussion boards and forums. Email support groups - the CBF one is invaluable! You can ask questions, exchange ideas, keep up to date with research and be part of a community. You no longer have to feel alone.

I started blogging a few years ago to share the experiences of my son as he made the transition to adulthood. Through my blog I have made many on-line friends, express opinions, share information, have discussions and have learnt much from others. As well as raising positive awareness as I have tried to show even with severe behaviour that is challenging my son can have a good quality of life. Through the internet I have given my preverbal son a voice.

More recently I succumbed to Facebook and Twitter - which has proved to be a valuable source of information, activities, expression, inspiration and support. I was a bit nervous to start with as I am not the most social of people but Facebook is what you make of it and is an excellent way of quickly and easily being able to keep up to date - especially now as the CBF have their own Facebook page full of useful links and websites. A great way to share knowledge and so encouraging better practice.

Jen Fookes, family carer.


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