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Now recruiting participants for research looking at what children with severe learning disabilities want from care

The Challenging Behaviour Foundation is looking for participants to take part in an exciting new project asking children with severe learning disabilities about what good support looks like for them. This would include working with you and your relative to understand their unique communication needs and tailoring their participation in a way that is suitable and appropriate for them.

Alongside the important aim of hearing the voices of children and young people, we also hope to use this project as a demonstration to professionals, services and other people who work with this group about how they could engage with children who communicate non-verbally. Having good communication with children can help to ensure they are fully involved in making decisions about their care and support.

Participating in the project would involve:

• An initial conversation with a member of our team who will be able to answer any questions you may have and explain the next steps.

• A home visit from a trained researcher, that is flexible and arranged around you, to communicate with your child the way that works best for them.

• Your permission for your child’s views to be shared in the project.

How your family participates in the project will look slightly different for each person, depending on your family’s needs and circumstances.

We are happy to keep you updated about the progress of the project, including when we publish our results.

For more information and to take part, please email alex.truscott@thecbf.org.uk or give us a call on 01634 838 739.

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