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Supporting a child, teenager or adult? Click on the word child, adult or teenager to jump to the right section for you.

All our information sheets are available to download free of charge on this website. All our resources are available free to family/ unpaid carers in the UKIf you are a family carer and wish to order an information sheet, pack or DVD please contact us directly or see our resource order form. For professionals and registered charities, please order online or see our resource order form.

 

Children

Challenging Behaviour: The Basics 

Understanding Challenging Behaviour: Part 1

An information sheet with basic information about why challenging behaviour happens and what can be done.

Finding the Causes of Challenging Behaviour: Part 2

This information sheets helps you to understand more about what causes challenging behaviour and what help you can get. 

An Introduction to Challenging Behaviour DVDAn Introduction to Challenging Behaviour DVD

A Consultant Clinical Psychologist, along with family carers present a basic introduction to challenging behaviour associated with severe learning disabilities.

To read more and view a short clip click here

At a Glance Guide to Getting the Right Support for Children

Produced in partnership with the Social Care Institute for Excellence this guides set out how to get the right support for your relative. 

Challenging Behaviour Information Pack

This information pack contains 12 of our information sheets about severe learning disability and behaviour that challenges. (Includes a summary version of each sheet along with a full version) Click here to find out which information sheets are in this pack.

Communication

Communication and Challenging Behaviour

This information sheet explains the link between communication and challenging behaviour.

Communication and Challenging Behaviour DVDCommunication

In this 45 minute DVD we meet Rhys, Laura, Sean and Isobel to examine the link between communication and challenging behaviour.

To read more and view a short clip click here.

Specific Behaviours

Pica (Eating inedible objects)

This information sheet helps you to understand how to help a child or adult who is eating inedible objects e.g. stones, faeces or clothing.

Self Injurious Behaviour

This information sheet explains how to get help for self-injurious behaviours such as eye-poking, head banging, self-biting and skin picking. 

Self-Injurious Behaviour DVDSelf-Injurious Behaviour DVD

The UK's leading authorities on self-injurious behaviour, join forces with two families to offer clear and practical information and advice to families caring for individuals with severe learning disabilities.

To read more and view a short clip click here

Responses to Challenging Behaviour

Positive Behaviour Support Planning: Part 3

Are you looking for information on managing challenging behaviour? If so this is the information sheet for you. It explains what a positive behaviour support plan is, who needs one and why.

Challenging Behaviour - Supporting Change DVD

Challenging Behaviour - Supporting Change DVD

In this 2-disc DVD set find out how a functional assessment can help you to understand challenging behaviour and identify ways of supporting behaviour change

To read more and view a short clip click here

The Use of Medication in the Treatment of Challenging Behaviour 

Read this information sheet to understand more about the use of medication and when it is and is not appropriate.

Physical Intervention

This information sheet is useful for anyone who is using or considering the use of physical interventions such as restraint. 

Specialist Equipment

An information sheet which gives details of specialist equipment and safety adaptations to improve safety and protect your home.

Health and Challenging Behaviour

Health and Challenging Behaviour

Understand more about the link between health and challenging behaviour by reading this information sheet. 

Mental Health Problems

An information sheet about different mental health problems and appropriate treatments.

Education

For Families: Getting an Education, Health and Care Plan

This summary sheet contains guidance for parents and carers on how to request an EHC plan, the processes involved in getting one, and what the new EHC plans should include. (The full information sheet is coming soon)

For Professions: Developing an Education, Health and Care Plan

This information sheet contains guidelines for professionals on developing EHC plans for young people with severe learning disabilities and behaviour described as challenging, following their introduction in September 2014.

Getting A Statement

Read this information sheet to find out what a SEN statement is and what to include to help your child at school.

52 Week Schools and Colleges

A list of residential schools and colleges in the UK for people with severe learning disabilities and behaviour described as challenging. 

Positive Behaviour Support Study Pack for Schools and Colleges

positive-behaviour-support.jpgBased on our successful Positive Behaviour Support workshops and Supporting Behaviour Change DVD, our Positive Behaviour Support Study Pack gives staff the skills to understand and reduce challenging behaviour in young people with severe learning disabilities.

The pack contains detailed, practical information, exercises, as well as video clips of families and professionals. It is designed to be used by schools for staff learning and development, and as an ongoing resource. Read more here.

Being a Family Carer 

The Impact of Caring on Families

This information sheet looks at the impact caring can have on families and ways to help you cope.

Family Carer's Information Directory

Details of organisations, books, blogs and information that family carers may find useful.

 

Teenagers

Challenging Behaviour: The Basics

Understanding Challenging Behaviour: Part 1

An information sheet with basic information about why challenging behaviour happens and what can be done.

Finding the Causes of Challenging Behaviour: Part 2

This information sheets helps you to understand more about what causes challenging behaviour and what help you can get. 

An Introduction to Challenging Behaviour DVDAn Introduction to Challenging Behaviour DVD

A Consultant Clinical Psychologist, along with family carers present a basic introduction to challenging behaviour associated with severe learning disabilities.

To read more and view a short clip click here

At a Glance Guide to Getting the Right Support for Teenagers

 Produced in partnership with the Social Care Institute for Excellence these guides set out how to get the right support for your relative. 

Challenging Behaviour Information Pack

This information pack contains 12 of our information sheets about severe learning disability and behaviour that challenges. (Includes a summary version of each sheet along with a full version) Click here to find out which information sheets are in this pack.

Communication

Communication and Challenging Behaviour

This information sheet explains the link between communication and challenging behaviour.

Communication and Challenging Behaviour DVDCommunication

In this 45 minute DVD we meet Rhys, Laura, Sean and Isobel to examine the link between communication and challenging behaviour.

To read more and view a short clip click here.

Specific Behaviours

Pica (Eating inedible objects)

This information sheet helps you to understand how to help a child or adult who is eating inedible objects e.g. stones, faeces or clothing.

Difficult Sexual Behaviour Amongst Men and Boys with Severe Learning Disabilities

Understand more about difficult sexual behaviour and how to respond by reading this information sheet. 

Self Injurious Behaviour

This information sheet explains how to get help for self-injurious behaviours such as eye-poking, head banging, self-biting and skin picking. 

Self-Injurious Behaviour DVDSelf-Injurious Behaviour DVD

The UK's leading authorities on self-injurious behaviour, join forces with two families to offer clear and practical information and advice to families caring for individuals with severe learning disabilities.

To read more and view a short clip click here.

Responses to Challenging Behaviour

Positive Behaviour Support Planning: Part 3

Are you looking for information on managing challenging behaviour? If so this is the information sheet for you. It explains what a positive behaviour support plan is, who needs one and why.

Challenging Behaviour - Supporting Change DVD

Challenging Behaviour - Supporting Change DVD

In this 2-disc DVD set find out how a functional assessment can help you to understand challenging behaviour and identify ways of supporting behaviour change

To read more and view a short clip click here

The Use of Medication in the Treatment of Challenging Behaviour 

Read this information sheet to understand more about the use of medication and when it is and is not appropriate.

Physical Intervention

This information sheet is useful for anyone who is using or considering the use of physical interventions such as restraint. 

Specialist Equipment

An information sheet which gives details of specialist equipment and safety adaptations to improve safety and protect your home.

Health and Challenging Behaviour

Health and Challenging Behaviour

Understand more about the link between health and challenging behaviour by reading this information sheet. 

Mental Health Problems

An information sheet about different mental health problems and appropriate treatments.

Education

For Families: Getting an Education, Health and Care Plan

This summary sheet contains guidance for parents and carers on how to request an EHC plan, the processes involved in getting one, and what the new EHC plans should include. (The full information sheet is coming soon)

For Professions: Developing an Education, Health and Care Plan

This information sheet contains guidelines for professionals on developing EHC plans for young people with severe learning disabilities and behaviour described as challenging, following their introduction in September 2014.

Getting A Statement

Read this information sheet to find out what a SEN statement is and what to include to help your child at school.

52 Week Schools and Colleges

A list of residential schools and colleges in the UK for people with severe learning disabilities and behaviour described as challenging. 

Positive Behaviour Support Study Pack for Schools and Colleges

positive-behaviour-support.jpgBased on our successful Positive Behaviour Support workshops and Supporting Behaviour Change DVD, our Positive Behaviour Support Study Pack gives staff the skills to understand and reduce challenging behaviour in young people with severe learning disabilities.

The pack contains detailed, practical information, exercises, as well as video clips of families and professionals. It is designed to be used by schools for staff learning and development, and as an ongoing resource. Read more here.

Housing

8 Ways to get a House

8 ways to get a House

This guide is to help you and your relative think about the different types of accommodation and how they are funded.

We explain what your options are in 8 ways to get a house.  To read more click here.

Social Care

Planning for the Future

An information sheet to help when considering what your relative’s future should look like.

Planning for the Future Information Pack

England/N Ireland/Wales

planning-for-the-future-information-pack

An information pack written for people planning for the future of children aged 12 and upwards (transition), and those concerned about the support needs of adult sons and daughters.

Contents include: Know your rights; Know the processes; Know your options; Case studies; Understanding the funding; Safeguarding & protecting the individual. To read more click here.

Ten Top Tips

An information sheet which provides ten top tips to help you get the right support for your family member aged over 18.

Making Decisions - The Law 

An information sheet which sets out how to get legal authority if your family member is over 16 and unable to make decisions about their money, housing or health themself. 

Making Decisions FAQ

We get asked some questions a lot. Here are our answers to two questions about what to do when you're worried professionals are making decisions for your relative without consulting you.

Mental Capacity Act Template Letters 

If you're concerned that you are not being involved in decisions affecting your family member, our template letters are designed to help you challenge this.

A guide for Advocates (England & Wales)

Advocates

If you are a professional advocate, or a family carer advocating on behalf of your family member, this comprehensive and practical guide to advocacy is for you. 

Understand more about challenging behaviour, advocacy and the key issues which are likely to arise.  To read more click here.

Being a Family Carer

The Impact of Caring on Families

This information sheet looks at the impact caring can have on families and ways to help you cope.

Further information for Family Carers

Details of organisations, books, blogs and information that family carers may find useful.

 

Adults

Challenging Behaviour: The Basics

Understanding Challenging Behaviour: Part 1

An information sheet with basic information about why challenging behaviour happens and what can be done.

Finding the Causes of Challenging Behaviour: Part 2

This information sheets helps you to understand more about what causes challenging behaviour and what help you can get. 

An Introduction to Challenging Behaviour DVDAn Introduction to Challenging Behaviour DVD

A Consultant Clinical Psychologist, along with family carers present a basic introduction to challenging behaviour associated with severe learning disabilities.

To read more and view a short clip click here

At a Glance Guide to Getting the Right Support for Adults

 Produced in partnership with the Social Care Institute for Excellence these guides set out how to get the right support for your relative. 

Challenging Behaviour Information Pack

This information pack contains 12 of our information sheets about severe learning disability and behaviour that challenges. (Includes a summary version of each sheet along with a full version) Click here to find out which information sheets are in this pack.

Communication

Communication and Challenging Behaviour

This information sheet explains the link between communication and challenging behaviour.

Communication and Challenging Behaviour DVDCommunication

In this 45 minute DVD we meet Rhys, Laura, Sean and Isobel to examine the link between communication and challenging behaviour.

To read more and view a short clip click here.

Specific Behaviours

Pica (Eating inedible objects)

This information sheet helps you to understand how to help a child or adult who is eating inedible objects e.g. stones, faeces or clothing.

Difficult Sexual Behaviour Amongst Men and Boys with Severe Learning Disabilities

Understand more about difficult sexual behaviour and how to respond by reading this information sheet. 

Self Injurious Behaviour

This information sheet explains how to get help for self-injurious behaviours such as eye-poking, head banging, self-biting and skin picking. 

Self-Injurious Behaviour DVDSelf-Injurious Behaviour DVD

The UK's leading authorities on self-injurious behaviour, join forces with two families to offer clear and practical information and advice to families caring for individuals with severe learning disabilities.

To read more and view a short clip click here.

Responses to Challenging Behaviour

Positive Behaviour Support Planning: Part 3

Are you looking for information on managing challenging behaviour? If so this is the information sheet for you. It explains what a positive behaviour support plan is, who needs one and why.

Challenging Behaviour - Supporting Change DVD

Challenging Behaviour - Supporting Change DVD

In this 2-disc DVD set find out how a functional assessment can help you to understand challenging behaviour and identify ways of supporting behaviour change

To read more and view a short clip click here

The Use of Medication in the Treatment of Challenging Behaviour 

Read this information sheet to understand more about the use of medication and when it is and is not appropriate.

Physical Intervention

This information sheet is useful for anyone who is using or considering the use of physical interventions such as restraint. 

Specialist Equipment

An information sheet which gives details of specialist equipment and safety adaptations to improve safety and protect your home.

'Meeting the Challenge' Guides

'Meeting the Challenge' Guide 1: Understanding challenging behaviour and getting advice and support

One of the 'Meeting the Challenge' guides produced by the Challenging Behaviour Foundation, alongside Mencap and Respond. This factsheet provides information and signposting to help you understand challenging behaviour and how to go about getting support for your family member.

'Meeting the Challenge' Guide 2: What does good support look like for adults with learning disabilities who display challenging behaviour?

One of the 'Meeting the Challenge' guides produced by the Challenging Behaviour Foundation, alongside Mencap and Respond. This factsheet describes what ‘good support’ should include for people with learning disabilities whose behaviour is described as challenging. Good support will help the person lead a full, active life and help avoid challenging behaviour escalating into a crisis.

'Meeting the Challenge' Guide 3: What if it is getting difficult to support my family member at home or in their current service?

One of the 'Meeting the Challenge' guides produced by the Challenging Behaviour Foundation, alongside Mencap and Respond. This factsheet will provide you with information about what can happen when it becomes difficult to support a family member at home, or in their current service and they require more specialist assessment and support.

'Meeting the Challenge' Guide 4: My family member has been sent to an inpatient unit - what do I need to know?

One of the 'Meeting the Challenge' guides produced by the Challenging Behaviour Foundation, alongside Mencap and Respond. This factsheet will provide you with information that you need to know if your family member is admitted to an inpatient unit for assessment or treatment.

'Meeting the Challenge' Guide 5: Poor care and abuse

One of the 'Meeting the Challenge' guides produced by the Challenging Behaviour Foundation, alongside Mencap and Respond. This factsheet provides information to help you understand what is meant by abuse and poor care and support. It also provides information about who to talk to if you suspect that your family member is experiencing either or both of these things and needs safeguarding.

'Meeting the Challenge' Guide 6: How do we plan for a successful discharge for my family member?

One of the 'Meeting the Challenge' guides produced by the Challenging Behaviour Foundation, alongside Mencap and Respond. This factsheet will provide you with information about planning for a family members discharge from an inpatient unit.

'Meeting the Challenge' Guide 7: How do my family member's rights change as they become an adult?

One of the 'Meeting the Challenge' guides produced by the Challenging Behaviour Foundation, alongside Mencap and Respond. This factsheet will provide you with information about some of the main changes that will occur when your son/daughter moves from childhood to adulthood.

'Meeting the Challenge' Legal FAQ: Frequently asked questions about the law

One of the 'Meeting the Challenge' guides produced by the Challenging Behaviour Foundation, alongside Mencap and Respond. This factsheet will provide you with information about your family member's legal rights in relation to social care and health provision and how to exercise these rights.

Health and Challenging Behaviour

Health and Challenging Behaviour

Understand more about the link between health and challenging behaviour by reading this information sheet. 

Mental Health Problems

An information sheet about different mental health problems and appropriate treatments.

Housing

8 ways to get a House

This guide is to help you and your relative think about the different types of accommodation and how they are funded.

We explain what your options are in 8 ways to get a house.  To read more click here.

Social Care

Planning for the Future

An information sheet to help when considering what your relative’s future should look like.

Planning for the Future Information Pack

England/Scotland/N Ireland/Wales

planning-for-the-future-information-pack

An information pack written for people planning for the future of children aged 12 and upwards (transition), and those concerned about the support needs of adult sons and daughters.

Contents include: Know your rights; Know the processes; Know your options; Case studies; Understanding the funding; Safeguarding & protecting the individual. To read more click here.

Ten Top Tips

An information sheet which provides ten top tips to help you get the right support for your family member aged over 18.

Making Decisions - The Law 

An information sheet which sets out how to get legal authority if your family member is over 16 and unable to make decisions about their money, housing or health themself. 

Making Decisions FAQ

We get asked some questions a lot. Here are our answers to two questions about what to do when you're worried professionals are making decisions for your relative without consulting you.

Mental Capacity Act Template Letters 

If you're concerned that you are not being involved in decisions affecting your family member, our template letters are designed to help you challenge this.

A guide for Advocates (England & Wales)

Advocates

If you are a professional advocate, or a family carer advocating on behalf of your family member, this comprehensive and practical guide to advocacy is for you. 

Understand more about challenging behaviour, advocacy and the key issues which are likely to arise.  To read more click here.

Being a Family Carer

The Impact of Caring on Families

This information sheet looks at the impact caring can have on families and ways to help you cope.

Family Carer's Information Directory

Details of organisations, books, blogs and information that family carers may find useful.


All our information sheets are available to download free of charge on this website. All our resources are available free to family/ unpaid carers in the UKIf you are a family carer and wish to order an information sheet, pack or DVD please contact us directly or see our resource order form. For professionals and registered charities, please order online or see our resource order form.

 

 

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