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Niamh is 7 and has Tuberous Sclerosis (TS). She can’t communicate or look after herself in any way. She... read the full story
My son Adam is 23. He has severe learning disabilities, epilepsy, autism and severe challenging behaviour. Adam often... read the full story
When our son William was diagnosed with Tuberous sclerosis we decided that stairs and complex epilepsy were not a... read the full story
When my son was small I could only take him to playgrounds in the rain as I knew they would be empty. Shopping was a... read the full story
Simon is a fantastic 6 year old boy with Fragile X syndrome, but as is no doubt true of many other parents, we have... read the full story
When my son was diagnosed we didn’t have mobile phones or computers. And because of my son’s challenging... read the full story
Josie is 16 years old and has severe learning disabilities, epilepsy and challenging behaviour. Initially she went to... read the full story
My brother Deepak is 28, the youngest of five siblings. Deepak has a wonderful presence and the best smile and we are... read the full story
My daughter, Katie, has Tuberous Sclerosis, which is a genetic condition and it manifests in various organs, causing... read the full story
As the parent of a 21 year old with severe learning disabilities and behaviour that challenges, I have found that... read the full story
If there is one thing that sticks out in my mind about my son Christopher, who has autism and severe learning... read the full story
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