Your Stories
Consent to Treatment
My son Adam is 23. He has severe learning disabilities, epilepsy, autism and severe challenging behaviour. Adam often becomes constipated and when he lived at home we... Read Full Story
Victory for Katie
My daughter, Katie, has Tuberous Sclerosis, which is a genetic condition and it manifests in various organs, causing growths. To date, Katie has had growths in... Read Full Story
Shopping with Christopher
If there is one thing that sticks out in my mind about my son Christopher, who has autism and severe learning disabilities, it has to be shopping. It would... Read Full Story
A Sibling's Perspective
My brother Deepak is 28, the youngest of five siblings. Deepak has a wonderful presence and the best smile and we are very close. Growing up with a brother with... Read Full Story
Opening my World
When my son was diagnosed we didn’t have mobile phones or computers. And because of my son’s challenging behaviour life could be very isolating. The few... Read Full Story
Doing our Best
Simon is a fantastic 6 year old boy with Fragile X syndrome, but as is no doubt true of many other parents, we have found it hard to enjoy Simon and have felt our... Read Full Story
Families as Partners
As the parent of a 21 year old with severe learning disabilities and behaviour that challenges, I have found that when we are able to work in partnership pooling all... Read Full Story
Niamh's story
Niamh is 7 and has Tuberous Sclerosis (TS). She can’t communicate or look after herself in any way. She loves eating and swimming. Despite... Read Full Story
Creating William's Space
When our son William was diagnosed with Tuberous sclerosis we decided that stairs and complex epilepsy were not a good combination, so we moved to a bungalow. ... Read Full Story
Choosing the Best School
Josie is 16 years old and has severe learning disabilities, epilepsy and challenging behaviour. Initially she went to our local special needs school, but she was... Read Full Story
