Personalisation and People with Behaviour that Challenges
People with complex needs are more in need of personalisation than anyone. Yet the CBF was aware they were rarely getting access to personal budgets. And there were many concerns about the quality of service outcomes for them – and this was before the Winterbourne View Panorama programme. So the CBF worked with some East Midlands local authority and NHS commissioners and the Department of Health provided some funding so some families from elsewhere could be included.
The CBF’s personalisation project ran between summer 2011 and summer 2012. The aim was to understand how to deliver personalisation for people with learning disabilities whose behaviour is described as challenging.
Personalisation means support and services being geared to a person’s individual sought outcomes which have been identified through person-centred planning. So instead of being placed in any available care home or hospital, a person would perhaps access supported living near their family or other local connections; be involved in the local community or access creative employment opportunities related to their character, abilities or interests.
The main benefits the project sought to achieve were to
- Ensure higher quality outcomes for the 26 individuals
- Achieve better outcomes for the same or less money
- Reduce out of area placements, with more people living close to their families
- Improve future commissioning based on the work of the project
- Disseminate learning from the project widely.
The CBF’s personalisation project drew to a close in late summer 2012. Here is the report from the project in various pdf files
- The full report in large font with all appendices (85 pages)
- A short version of the report in small font and with no appendices developed for the 2012 National Children and Adults Services conference (10 pages)
- These are the appendices to the report which you can read separately
A quick steer for those who are interested in policy and comment
A practical checklist when planning major lifestyle change with someone or reviewing whether everything is in place to get the best outcomes
A long document touching on each person’s situation and the key issues with which the project engaged
Fictitious names but real reports. These show how useful such reports can be to a commissioning care manager
Their joint commissioning team led by the local authority has social workers and nurses in the same team commissioning across the NHS / LA ‘divide’. Access to ATU is via the team as well as the resources to prevent admission.
This appendix is for families who think their relative needs more personalised services and may be facing an uphill struggle to progress matters
Definitely one for the social policy student – an in-depth log of every issue the project encountered. 18 pages!
A transparent account of what worked and what didn’t
Our request for feedback elicited two responses which were most useful
This project was running in parallel with the personalisation project
L. Halton’s positive behaviour support service came to our attention after the report was written. Other local authorities or groups of local authorities might want to consider setting up this kind of service
The CBF has other information to help you participate actively in planning good support for people which can be found here
For more information contact firstname.lastname@example.org